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Not my usual New Year’s Eve!

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I like New Year”s Eve. As an adult, I’ve always preferred it to Christmas. From the age of about 18, I started having parties at home, in the days when I was living with my parents and they were out for the night. It all started one year when I thought I was the only person in the world who didn’t have something planned for New Year’s Eve, so I tentatively asked if any of my friends were at a loose end. Actually, they were. Before I knew it, I had myself a small party. But then word got out, only to people I did actually know. But one by one they started arriving. school friends and half the local rugby club, Bancrofts, for whom many of my school friends played. By the time my parents arrived home with their friends, the party was in full swing. It also became an annual event until we all split up and went off to university.

The next big New Year’s Eve do’s took place in the yacht club at St Katharine’s Dock, when we lived there on our boat. They were big, fun do’s full of friends from the boats and neighbouring flats. Then there was the do we held on our floating bar and restaurant, the Wibbley Wobbley, the first and only year Martin owned it down in South Dock, Rotherhithe, where it remains to this day. it was 1990 and opposite, the new Canary Wharf tower was just being unveiled. We all stood out on the quayside at midnight and watched the fireworks across the water.

After this were the Limehouse years. We had some fantastic fancy dress parties at the headquarters of the Cruising Association (cruising as in boating, not. What you might be thinking!).

Each year someone would pick a letter out of a hat and that would be the theme for the night.
Martin really went town on our costumes and he won almost every year until one year they asked him to judge instead of always stealing prize. We’d always have at least 70 people and a great night was had by all.

The past few years, our social scene has largely moved down to Ramsgate, where we keep and race our boat, Magnum. New Year’s Eve has accordingly moved down there, to the Royal Temple Yacht Club,where invariably we enjoy a black tie do with meal and dancing to a small band.

But this year, making plans has been all disrupted. As I was to have my second session of chemo just two days before New Year’s Eve, and didn’t know how I would be feeling, I thought it was a bit risky to plan to go to Ramsgate and do the big night.

As it turns out, I feel pretty good, and could no doubt have done it in style. Part of me though, knows it was a sensible decision not to go. We have now decided to go down tomorrow, New Year’s day, to attend our friends’ annual New Year’s day party in their home, which will be pleasant, intimate and relaxing. We will stay overnight with our dear friends’ Sue and Tommy (staying on the boat would be fine but walking up to the shower block in the morning perhaps not ideal), and on Monday we will see the grandchildren and finally give them their Christmas presents.

So all should be fine. But I’m hopeless at staying in. I thought we wold go out to our local pubs at least, but Martin suggests they’ll be crowded and full of strangers and that it won’t be a good atmosphere for avoiding germs, or maybe even late night punch ups! He’ probably right, but even though I must admit to feeling a tad tired, it’s really not my idea of a fun NewYear’s Eve. I’m being a bit childish and ungrateful. Martin will cook us a nice meal. He has champagne on ice for me. We’ve invited a couple of friends up for a drink who may or may not come, and we’ll be refreshed and ready for a good day tomorrow.

But I’m a party animal, and it’s that party spirit that will get me through the next six months or so and way beyond that. So, I’ll try to accept my night in with good grace. Martin has even said that if I really want to pop out for a drink later, he’d walk me down and come and collect me. He just doesn’t fancy it. But I won’t go, I’m sure. No, I’ll sit this one night out, albeit in my lovely flat, sipping pink champagne. But I won’t be making a habit of it. Too much partying left to do!

And to all my lovely friends and family, who I won’t be with tonight, have a wonderful New Year’s Eve, a happy, healthy 2012, and just watch out this time next year! I’ll be back with a vengeance!!

Loads of love to you all! Jo Xxxxxxx

Chemo today

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Have enjoyed some ten days of feeling pretty much normal apart from unfortunately picking up a cold a few days ago. Have my second dose of chemo this afternoon. At least the fear of the unknown is gone and I know what to expect. I will be accompanied again by my sister, Lou, and this time her partner, Bev.

The good news is that I saw my oncologist yesterday and firstly, she thought the lump had already begun to shrink, which has to be good news after only one round of chemo out of eight. Secondly, she reckoned that if I didn’t feel sick after the first round, I should be fine with the rest. Thirdly, she’s more than happy for me to resume exercising, provided, she suggested, I didn’t want to go bungee jumping! I assured her that was not on my wish list! And finally, she reiterated her advice to get on and enjoy life. Go to the theatre, restaurants, anywhere but the most crowded places, she said. Fine by me!

I’m not being too ambitious for New Year’s Eve. Much as I’d like to go down to Ramsgate and enjoy the celebrations at the Royal Temple Yacht Club, I know from last time that just two days after chemo I might be feeling a bit tired and spaced out. It”s hopefully just one year and I think it would be silly to push myself one step too far. Hopefully we can pop out locally, where I’m sure we’ll bump into plenty of people we know. If i feel up to it we may go down to Ramsgate for New Year’s Day, when we’re invited to our friends Ian and Myra for what has long been a traditional get together. But, as I’ve said before and as I’ve warned my friends, flexibility has to be the mantra for the next few months. I will do everything I can, but I may have to let people down at the last minute or conversely, let them know I’m coming at the last minute too. I know they’ll all understand!

And now, I’d better go and get ready. Lou and Bev are due in an hour and a half, and knowing them, they’ll be early. Just for this session we’re having to go to a different location for the chemo — still part of the same clinic but further away, near Regents Park. Martin is coming to pick us up and take us there. I just hope they’re ready for Lou!!

Being sensible!

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I have a cold! Just a standard for this time of the year cough and cold. But of course, at the moment, nothing is standard. I have to be careful it doesn’t turn intoa chest infection or worse.

So I’ve had to take the difficult decision not to go down to Ramsgate and see all of our lovely grandchildren and our friends. It seemed the perfect time to go down. I’m feeling back to normal after the first chemo session and have the next one on Thursday. We were to have gone round to my stepson Matthew and daughter-in-law Claire for lunch and to give 3 year old Olivia her present. We were hoping also to see our other three grandchildren, Eve, Josh and Fay and to go to friends for a party. But I knew also that with this cold, that wold be pushing my luck.

Of course everyone concerned understood. But it’s going to be a question of flexibility and last minute decisions for the next few months. I’ve never been good at not doing things, but I recognise that I have to put my health first for now.

It’s hard not seeing the children. But I know they’ll understand. And hopefully there will be plenty of time to mak it up to them, and to me!

A very happy Christmas and New Year to all!

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I’m afraid I haven’t sent a single Christmas card this year, and I’ve excused myself. The tests and diagnosis came just at the time I’d have been buying and writing them and, sorry, it was just one thing I felt I could cut out this year!

But that doesn’t mean that I am feeling in any way “bah humbug” about this Christmas. Quite the opposite. I haven’t felt this full of Christmas cheer for many years.

The week’s festivities continued yesterday with a pleasant early drink in the Grapes. On our way out of the pub at the sensible hour of 7pm, the plan to go straight home yet again got derailed though. Our friend Martin, who lives directly opposite the pub, just happened to be walking into his house as we left.

Having not seen him since I got my news, he was keen to say hi and have a quick catch up. He was going out in about an hour for a pre-Christmas meal with eight or nine friends, all of whom we know and who were on their way round for a drink. Why didn’t we pop in for a drink too? Couldn’t think of a good enough reason to say no to a glass of champers, so I didn’t!! Oh well, it’s only once a year – well Christmas anyway, although there is always an excuse to have fun!!

I’m really looking forward to tomorrow too. We will be 15 for Christmas lunch — the sort of number we’ve had most years since I was a small child, always round at my parents’ house. In the last couple of years Martin has taken over cooking duties from my mum and this year we decided to do it at our place. We will be joined by my cousins, aunt, my cousin’s two daughters, one of their boyfriends and his parents!

Those who know me will know that I will not be allowed anywhere near the kitchen, and that has absolutely nothing to do with my current illness. I’m feeling fit and healthy this week, but as I never do the cooking it would not only be bizarre to start now, it would mean my guests would no doubt decide they’d suddenly got alternative arrangements!

So here’s to a wonderful Christmas to all my wonderful friends and family, and may 2012 be a good year in whatever way you define good!! Loads of love to you all – Jo xxxxx

I’ve had a complaint!!

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I appear to have upset someone with one or more of my blog posts. Yes, I’ve definitely upset her. She was so upset by it she felt compelled to phone me last night to complain.

She, is my sister-in-law Mary. The reason for her upset was not that I made her cry when talking about breaking the news of my illness to my parents. Nor was it details of my first chemo session that disturbed her or the fact that I was doing too much “woe is me” brow-beating.

No, the problem was, there she’d been, sat at home down in Poole, two and a half hours from London, picturing me on my sick bed, concerned that she was too far away to help, worrying about Martin and me, and resorting to reading my blog to keep her abreast of developments.

So, when she read my latest posts, she suddenly thought, “wait a minute, what’s going on here? I’m sat here worrying and she’s out there partying!!”

I appear to have given the impression that I’ve been spending my days lunching with ladies, shopping and drinking wine. No, really, I’ve had to take a little time out to take my pills!! Sorry, I said, enjoying yourself is just an unintended consequence of having a positive attitude and being determined that the b******s won’t get you down. It’s not my fault, it just happens!! (Note to self, keep in toned down in future, especially on “work” days!!!!

It happened again yesterday. That “side effect” of enjoying yourself! After a brief attempt to find a story for work (unlikely in the few days before Christmas so I didn’t stress for too long over it!!), I phoned my friend Jill to see if she wanted to make good on her offer of meeting for lunch. She took little persuading. I needed to “pop” into Canary Wharf for one last present, so she suggested meeting me down there at Jamie Oliver’s Italian cafe. Well, it would have been rude not to, wouldn’t it?

Enlivened by a glass of mulled wine and a beetroot risotto (very pink), we spent the statutory two hours chatting and soaking up the atmosphere. When we parted I had a few items on my shopping list so headed for Waitrose and picked up the requisite items. I think someone may have moved Waitrose though. It’s normally at the far end of the Canary Wharf shopping complex and walking from there to the other end and out toward home should take no more than ten minutes. Clearly though, as it appeared to take me at least two hours to come out the other end, they must have moved it! Well, every woman knows that retail therapy ought to be available on the NHS!!!

Fortunately, not too much damage was done to the wallet and my energy levels were holding up really well. I’m sure I would under normal circumstances have been more exhausted by two hours in a shopping mall! By the time I emerged it was nearly 5.30pm, which put me in the vicinity of the Grapes at around the time Martin would normally pop in for a pint. Also, our friend Trish had phoned to say she was heading over to the area to pick up her husband Colin after his day out at what they call “Sad Boys” (more of that later). So I wandered in, laden with bags, to find he wasn’t in fact there. But our friend Ross was. I had a nice cup of tea to start with (no really!). Then Martin arrived and others.

Trish eventually made it in around 7pm, having battled through London from Hampton Court way. And then the “Sad Boys” arrived! Sad Boys’ Christmas “lunch” is a tradition actually started by Martin and Pedro more than twenty years ago. The premise for the first one was that Martin and Pedro were both self-employed at the time and therefore not invited to the many Christmas parties and lunches that their friends in large companies were privy to. The very first Sad Boys’ lunch consisted of about five blokes sat in a cold, dingy Turkish restaurant in Stoke Newington (why there is anyone’s guess!). It was genuinely “sad”!

Trouble was, the following year, their non-sad mates were jealous of them, and hijacked the event. Thereafter, up to 25 blokes got together once a year, just before Christmas, in an ever-changing array of restaurants, pubs or general dives (they have to keep changing coz no place they’d been would want them back!!), to have lunch, drink, sing Christmas carols — ex-choirboy Martin’s party piece was always the first verse of “Once in Royal David’s City” — and then to pub crawl home!!

So in they all crawled last night. Someone depleted in number this year but nonetheless the cause of a very welcome reunion with some very good old friends, some of whom we hadn’t seen for ages (or maybe last Sad Boys!). My “army” of friends helping me with my present battle swelled considerably last night and I left the pub high on goodwill to all (sad) men, old friends, and a modest (thanks to the 125ml wine glass) amount of red wine.

Sorry Mary, will ask the clinic if there’s an antidote to this most unpleasant (for you anyway) side effect of my condition – fun!!!!!

The fog lifts and old memories make me smile

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A week since my first chemo session and I awoke this morning feeling pretty close to normal. Seems that once the bulk of the drug cocktail has worked its way through the system some sort of normality returns. That’s great. Quite a high in itself!

After a day closeted at home on rainy Monday, during which I managed to force myself back into work mode and file a story, I needed air yesterday. There was very little going on news wise in this run up to Christmas, so lunch with my dear old friend Franny was the perfect solution.

The sun was shining and I took a leisurely walk to St. Katharine’s Dock. Still felt a bit “cotton-woolly” when I started out but it definitely gets better once you get going.

Franny was running a little late so I settled myself in Zizzi’s at a table by the window overlooking the dock and the Thames sailing barges. It was a weird sensation. The first time I’d been to this Zizzi’s, but by no means the first time I’d sat in that very spot! This place used to be the St Katharine’s Yacht Club. From 1986 to 1988 Martin and I lived on our boat, Smokey, in St. Katharine’s.

They were heady days. I was 27 years old. There was a big group of people living on boats there from all walks of life. The yacht club was the hub of everything. You’d turn up there after work and there might be just one person there. By the time you left your table had grown and grown. Buying rounds of drinks for 20 people was not unheard of. To this day, we’ve no idea how we ever afforded it.

Oh, and the characters! That club saw the most eclectic mix of people you could ever attempt to dream up. For a start, this was the height of the “YUPPY” boom. So early evening, the place would fill with noisy, cocky, Gordon Gecko-styled traders brashly buying up the stocks of champagne to celebrate the day’s wins.

Then there was the News International crowd. Mostly sub-editors and the like, several of whom became very good friends, but who could drink for England and usually did. Once or twice a week there’d be a pianist playing jazz standards and encouraging the likes of Rosie, actually a sub on the Telegraph at the time, to just get up and dance, or sing, or both. We had wild fancy dress parties, parties on boats, impromptu parties. This was a seven-day a week party!

If the walls at Zizzi’s could talk!!

While reminiscing I decided to treat myself to a small glass of Prosecco and some garlic bread to soak it up. Franny had some catching up to do when she arrived. Franny and I met on about our first day at secondary school, Wanstead High, and have been friends ever since. We don’t live in each other’s pockets, but there is an ease and comfort when you’re with someone you’ve known since age 11 that can’t be underestimated. Where the two plus hours went I couldn’t tell you, but we chatted and ate a lovely salad and by the end I was feeling better than ever. In a really sweet gesture, Franny insisted on paying for my “get well lunch”, which, she said, obliged me to do just that and get well. I have no intention of letting her down!

By the time I walked back to Limehouse I was feeling almost normal, and content. You can’t beat fresh air and special friends!

We’d also planned to see another old friend in the evening, Pedro, who, coincidentally, we’d first met in those days in St Katharine’s. So to be sensible, I went home and had a bit of a rest. Nothing major, just a sit down with a cup of tea in front of some boring TV.

Then popped out to the Grapes for a couple of small glasses of red with Pedro. I felt great and appreciated every minute of it. Martin rustled up a fab prawn and noodle dish when we got home and by the time I got into bed at 11pm, I was ready for a good, normal night’s sleep. Joy!

A chink in my armour?

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When the battle commenced I reached for my heavy suit of armour. It was rapidly cobbled together but made from some strong and reliable components. First, there was my natural resilience, tried and tested after my early brush with serious illness. To this, I added my wonderful support network – family, friends and rapid access to the best of the medical profession. The third component was my physical condition at the point of diagnosis. Years of sticking to a regime of gym classes – yes, Jane Fonda really was an early inspiration — have meant that at 52, and with access to a great gym from work, I was (am!) as fit and trim as ever. Plenty of yoga and Pilates in the mix means I’m pretty strong and supple too. A great starting point then for the fight ahead.

But eight days ago I had a little procedure to insert a “port” – a little device that now sits in the top of my chest connected through a thin tube to a vein in my neck – through which they can administer all my chemo and take all my blood tests. Wonderful and far better than having my veins prodded and pushed every time. But I’ve had to refrain from strenuous exercise while the little wounds heal. And since there’s not much flesh around the site of the port, it’s been quite bruised and noticeable. So yesterday, just a week after my last yoga class (I went to one on the way to having the port inserted!!), I was feeling stiff, bloated, and less than fit.

And there was the chink in my armour. It was almost easy to face the onslaught from a point of feeling on top physical form. But keeping the mental strength at peak levels when the physical is struggling, will be more of a challenge.

I know I will be able to keep exercising and I definitely intend to keep up the yoga and Pilates. I love walking and in the next hour or so will be taking a nice long walk in the winter sunshine. I am just going to have to be disciplined with myself. Not too much comfort eating and plenty of stretching and moving, even when I don’t really feel like it. I will plaster over those chinks in my armour and get on with it.

Some normality returns

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Nytol and hot milk did the trick. I got a pretty good night’s sleep. Felt a bit woolly for the first part of the day. Could have been the Nytol, the other drugs, the lack of sleep followed by a long sleep. Who knows? But woolly is fine. And it’s gone now.

Going out in the fresh air is definitely the thing to do. Spent the morning doing some tidying up, which made me feel better anyway. The wonderfully helpful John Mason, setter up of this blog among many other techie triumphs, came round yet again today to help with setting up my old iphone for use by my dear husband. This could prove to be interesting. Martin is a man of many talents but technology is not one of them. We will see if we can teach him to make and receive calls first before tackling any “apps”!!

Went for a walk down to Canary Wharf. Still felt a bit fluffy, so just sat and had a cappuccino while Martin went shopping (for me I think!!) and dinner, of course! One thing of many that I don’t have to worry about through all this is cooking! As anyone who knows us knows, Martin does all the cooking and all the food shopping. He enjoys it and he’s great at it, so who am I to argue?

After shopping we popped into Weatherspoons for a quiet drink and walked home. I was ready to get back home by then and spent a couple of hours catching up with emails, admin and phoning old friends. Everyone has such lovely things to say. I’m really humbled and honoured by the thoughts my friends are expressing.

Not used to sitting in on Saturday nights though. We’re usually in Ramsgate socialising or elsewhere socialising, and suddenly, I’m bored. We (well Martin really) are watching a rubbish film we’d recorded and I suddenly felt I wanted to move, exercise, do something. Which is a great thing. Because if you feel bored, it means you’re not feeling ill. And I’m not. I had a bit of a stretch, thought I’d write a little blog, and may have a read. Martin put some Christmas decorations up today, so it looks lovely in here, and tomorrow is another day! Bring it on!

So far, so good!

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Well, the first chemo session is over and, more importantly, the day after had gone well. Mum and Lou were with me yesterday afternoon for the first session and apart from the fear of the unknown, I have to say it really wasn’t too awful. Well if it was, I wasn’t given the time to think about it. Anyone who knows Lou knows that she can speak/laugh/joke without drawing breath for as many hours as necessary and even the nurse did more laughing than nursing.

That aside, all went very smoothly and Martin picked us all up at 5pm. Didn’t feel bad when I got home and went to bed around 10.30.

The night was a little challenging, but I’m pretty sure that was as much fear of the unknown than anything else. I awoke at just after 1am to a feeling of total panic. Felt like something was coursing around in my veins and suddenly understood the phrase “waves of nausea”. An odd feeling of sickness/faintness came over me in a wave and then departed. This went on only for 10 minutes. I realised I might be simply panicking, so took a few deep yoga breaths and it was over for good. I didn’t sleep well after that with my brain going ten to the dozen, so woke up feeling rather jaded.

Martin offered to stay at home with me and I took him up on his offer. After a nice lie in, tea and toast and a relaxing bath, not to mention the cocktail of anti-sickness drugs I’d been sent home with, we went for a nice walk up to St Katharine’s Dock and back. It was very therapeutic and I felt much better by the time we got back. I even managed to give myself the little bone marrow injection in my stomach – not bad for someone who doesn’t like needles.

Today was also made much more reassuring by the two calls I received from The LOC (Leading Oncology Care) centre where I’m being treated. The first was from one of the breast care nurses and the second from the chemo nurse who treated me yesterday. How was I? Any worries or concerns?

Last night, my feet had been unusually cold when I got in. I thought about it for a while and then decided to phone the out of hours emergency number just to check. I was called back within five minutes by the nurse I’d met on my pre-chemo visit. “Hi Joanne, what can I do for you?”. He said it was natural that I’d experience various changes in my body while I was going through chemo but to check in with them for reassurance if I was worried about anything.

When the breast care nurse phoned this morning she knew that I’d had cold feet last night. Very reassuring!

I had held out on cancelling the not one but two social engagements I’d had booked for today (why do things always come on the same day or not at all?) because I wanted to stay positive about how I would take to the treatment. There was a lunch with my colleagues at work and dinner and theatre with friends. But after last night I realised that I would be pushing it too far to do either of these today.

There’s going to be a fine line between keeping active and carrying on with life and pushing my body too far, and I’ll have to be careful to keep the right side of that line.

But so far so good. My favourite quote of the week came on a lovely card from my very old friends Pedro and Sarah. It said: “You have a bit of a battle ahead but just remember you have a massive army of friends to help you”! That army, which of course includes my wonderful family and husband (General Ross) has certainly galvanised in the past two weeks and between us, the enemy will most definitely be conquered!! My love and thanks to you all!!

Random thoughts

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This morning, sitting in the waiting room of the LOC (Leaders in Oncology Care), it struck me how cancer knows no boundaries, not of class, or age or gender. I got there early for my 8.30am appointment with the doctor, but by 8.30 the room was full with people who I later realised were waiting to be called down for their chemo session.

Some were alone, some with their husbands/wives/partners/friends. Being Harley Street, many of them looked wealthy. They were men, women, old, young. They are people I might never have met in my “other life”. But suddenly we are all thrown together in this club that none of us wants to belong to.

I met one of the chemo nurses today and was shown the chemo suite. It’s as good as it could be. But it’s still what it is. Not that it will remain that way tomorrow by the time my sister has her way with it. Luckily, it was quite a buzzy place and certainly not quiet and clinical. Just as well because Lou and quiet have never met!

Had an echo cardiogram. To my darling GP cousin Bev, who suggested they’d struggle to find a heart, thanks, but these scanners are good and underneath everything else, there it was, perfectly normal and doing its job! Had I known anything about football I might have been able to reveal the name of the French speaking footballer who’s just signed for Newcastle and was also at the clinic for a heart scan. It’s all part of the requirement when you’re being bought for millions of pounds apparently!!

In between all my appointments, two of my very dear girlfriends texted me with their latest thoughts. It so happened that they were managing to grab a coffee together at lunchtime. One happened to have a meeting near where the other works. Nice, I thought. But then I started imagining them mentioning me. Not improbable by any stretch of the imagination given that I start chemo tomorrow and that I know they both care a lot.

But suddenly, I had a horrible feeling of no longer being “one of them”. “They” were the normal people. “I” was the friend with the horrible illness. It’s going to be hard for anyone who knows me not to think of me differently in the coming months, particularly as I lose my hair and there are other visible signs of change. But I realised how important it will be for me to try to carry on as normally as possible, and to show people that I’m still me, and I’m still one of them too.

While I’m at LOC tomorrow, I will be one of a sadly not so elite club. But at all other times I just want to be normal old me (albeit with the odd bad hair day!).